Project Name: Swansea SPMS Solution Joint Working Project
Joint Working Project Summary:
The principal aim of this Joint Working Project is to establish a new Secondary Progressive Multiple Sclerosis (SPMS) service for patients, allowing Swansea Bay University Health Board Tertiary Service to address the clinically unmet needs of SPMS patients across Swansea Bay, Hywel Dda, and Powys Health Boards with a supportive pathway to ensure optimal management.
Planned Milestones:
| Milestone | Description |
|---|---|
| 1 | Kick-off meeting held with key stakeholders to discuss and agree project plan |
| 2 | Collection of baseline data, set up and approval of pathway/protocol to govern clinical operations of the SPMS service of patient referral and triaging pathway |
| 3 | Collection and analysis of 6-month data |
| 4 | Collection and analysis of 12-month data |
| 5 | Write up of methodology and case study, development of Business case for national utilisation for sustained SPMS service funding |
Expected Benefits:
Patients:
- Improved access to optimal diagnosis and SPMS management;
- More equitable, timely and consistent access to care;
- Enhanced experience for patients and their carers, who live with SPMS.
NHS:
- High quality care in line with NICE Quality Standards for SPMS patients;
- Achievements of NHS/service targets;
- Improved productivity and efficiency;
- Use of wider Novartis service transformation expertise for the benefit of this and other SPMS services across the NHS.
Novartis:
- Use of appropriate medicines, which may (but not exclusively) include Novartis’ medicines, in suitable patients in line with NICE and other relevant local clinical guidelines (all treatment decisions rest with the treating physician);
- Treatment Algorithm for Multiple Sclerosis Disease-Modifying Therapies; 2019; https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2019/03/Treatment-Algorithm-for-Multiple-Sclerosis-Disease-Modifying-Therapies-08-03-2019-1.pdf
- Multiple sclerosis in adults: management; 2014; https://www.nice.org.uk/guidance/qs108/chapter/Introduction
- Better understanding of customers’ and patients’ needs;
- Improved reputation.
Start Date and Duration: December 2021 (15 months)
UK | December 2021 | 361619
Project Name: Swansea SPMS Solution
Partner Organisation(s): Swansea Bay University Health Board, 1 Talbot Gateway, Baglan Energy Park, Baglan, Port Talbot SA12 7BR
Completion Date: October 2024
Outcome Summary:
- Establishment of a new Secondary Progressive Multiple Sclerosis (SPMS) service for patients.
- Overall improvement in SPMS patient management, demonstrated by increase in number of SPMS patients meeting NICE criteria for review and treatment, and Increase in the percentage SPMS patients appropriately managed (as defined by CW Partner).
- Improved in service efficiency demonstrated by a reduction in number of patients lost to follow-up and reduction in number of bed days utilised by SPMS diagnosed patients.
Key Project Outcomes Data:
- 486/696 = 69.8% Increase in % SPMS patients meeting NICE criteria for review
- 48/696= 6.9% Increase in % SPMS patients meeting NICE criteria for treatment
- 69.8% Increase in the % MS patients appropriately managed by condition vs baseline
- 210/696 = 38.2% Reduction in the % SPMS lost to follow up
- 49/7% Reduction in number of Bed days utilised by SPMS diagnosed patients versus baseline
Outcomes:
The principle aim of this Joint Working Project has been achieved with the establishment of a new SPMS service for patients, allowing Swansea Bay University Health Board Tertiary Service to address the clinically unmet needs of SPMS patients across Swansea Bay, Hywel Dda, and Powys Health Boards with a supportive pathway to ensure appropriate identification, triage, and management of SPMS patients across the service footprint.
The Joint Working Project successfully secured capacity for:
- Consultant Neurologist to conduct annual SPMS review clinics,
- SPMS Specialist Nurse to conduct outpatient monitoring clinics,
- Administrative Support to facilitate efficient utilisation of clinic time.
Conclusion:
The Joint Working Project successfully achieved it’s principle of aim of achieving sustainable change thus enabling SPMS patients to access care pertinent to the management of their disease, and will ensure improvement in the quality of the care received by SPMS patients. The dedicated SPMS service will support the provision of annual reviews, assessment of transition to SPMS, and any other necessary clinical reviews required to manage and monitor the disease.
UK2112140358 | December 2024